We are glad to announce that we have established a partnership with the Czech patient organisation Taysachs, which supports patients with Tay-Sachs disease and other forms of GM2 gangliosidosis, and their families, in the Czech Republic.
Both organisations share the same goal — to bring together patients and their loved ones, to raise awareness of this rare disease, to work with professionals and to defend the interests of patients. At the same time we help families find the medical, rehabilitation and social support they need.
We believe that working together will contribute to better information, shared experience and support for families living with Tay-Sachs disease in both the Czech Republic and Slovakia.